A newborn baby died after contracting the HSV1 virus from exposure after birth.
Nicole Sifrit gave birth to Mariana on July 1 and proceeded to get married to Shane Sifrit on July 7, Des Moines Register reported.
On the evening of their wedding, they were rushing 18-day-old Mariana to Blank Children’s Hospital.
“We noticed she stopped eating and wasn’t waking up when we were trying to get her to respond,” Nicole said, WHOTV reported.
Mariana was placed in the neonatal intensive care unit and discovered she was suffering from a herpes simplex virus (Meningitis HSV1).
She learned that someone had given Mariana the cold sore virus, even though they might not have had an open sore.
“They touch her and then she touches her mouth with her hand,” Nicole explained.
Mariana was then flown to the University of Iowa Hospital.
“Just constantly watching every vital sign and she is currently on life support to help her by right now,” Nicole said. “She has a kidney team, a liver team, a blood team, a neurology team.”
After a tragic turn of events, Shane was in disbelief.
“I always thought this stuff happens,” Shane said. “And it’s a shame and never thought it would happen to me. I was not prepared at all.”
Nicole gave a warning to parents of newborns who may think simple physical affection is completely harmless.
“Keep your babies isolated,” Nicole said. “Don’t let just anyone come visit them. Make sure they are constantly washing their hands. Don’t let people kiss your baby and make sure they ask before they pick up your baby.”
Mariana died a day after arriving at the University of Iowa Hospital.
“Our princess Mariana Reese Sifrit gained her angel wings at 8:41 am this morning in her daddy’s arms and her mommy right beside her,” Nicole wrote on the GoFundMe page.
“She is now no longer suffering and is with the Lord. Thank you to everyone who has followed her journey and supported us through this. In her 18 days of life she made a huge impact on the world and we hope with Mariana’s Story we save numerous newborns life. R.I.P. sweet angel.”
According to the family, Mariana’s death was attributed to internal bleeding, seizures, kidney, and liver failure.
Doctors Struggle to Save Life of Newborn Without Skin
The future of a baby boy is unknown after he has spent the first three months of his life in hospitals due to being born without skin.
Priscilla Maldonado Gray and Marvin Gray welcomed their third child into the world on Jan. 1, the San Antonio Express-News reported.
“My whole time being pregnant everything was going good,” Maldonado wrote on a GoFundMe campaign page, “then an ultrasound showed that he wasn’t gaining weight so they decided to induce me at 37 weeks.”
The baby’s heart rate was dropping and doctors decided to perform an emergency C-section.
Ja’bari Gray was born missing most of his skin, aside from on his legs and head.
“It was just completely silent,” Maldonado told News 4 San Antonio. “You expect people to be happy after you have a baby and I had no idea until they put me in a room and explained what was going on. I was just confused [and] lost. I didn’t know what was going on [or] what was going to happen.”
Baby born without skin in San Antonio in stable condition — but not out of the woods https://t.co/32Zyd6RpBv
— San Antonio Express-News (@ExpressNews) April 16, 2019
The baby’s mother also revealed on the campaign page that her son’s chin was fused to his chest and his eyes were fused shut.
“The skin disorder he has is so very rare that no doctor has ever seen it before,” Maldonado wrote.
Uncertain Diagnosis
Doctors initially diagnosed Ja’bari with a rare skin condition called Aplasia Cutis. According to the Genetic and Rare Diseases Information Center, Aplasia Cutis is a congenital condition in which a person is born without skin.
But after the baby was transferred last Friday to Texas Children’s Hospital in Houston, specialists there think he may be suffering from a different condition.
“They’re just really focused on keeping him comfortable right now,” the mother said, adding that she and her husband are undergoing genetic testing to confirm a tentative new diagnosis—epidermolysis bullosa.
This baby and his family could use some help, if you’re able! https://t.co/bsOtlZmxEL
— Mollie (@MZHemingway) April 13, 2019
Epidermolysis bullosa is a rare genetic connective tissue disorder that leaves skin extremely fragile, even minor friction or trauma can easily cause blisters and tears.
People who suffer from the most severe form of the condition—called autosomal recessive dystrophic epidermolysis bullosa—also have a very high risk of developing a skin cancer called squamous cell carcinoma, the U.S. National Library of Medicine notes, “which tends to be unusually aggressive and is often life-threatening.”
According to the U.S. National Library of Medicine, about 6.5 American newborns out of 1 million births are afflicted with the overall condition, while “the severe autosomal recessive forms of this disorder affect fewer than 1 per million newborns.”
Additional effects of the disease “can include fusion of the fingers and toes, loss of fingernails and toenails, joint deformities (contractures) that restrict movement, and eye inflammation leading to vision loss,” the U.S. National Library of Medicine writes.
‘Very Long Road Ahead of Him’
“It could be two to three weeks before they have an answer. They don’t want to treat my son for the wrong thing,” Maldonado told the San Antonio Express-News.
As doctors wait to confirm their diagnostic suspicions, they are planning an operation to separate Ja’bari’s throat and chin from his chest.
“He’s been in the hospital his whole life,” the mother told San Antonio Express-News. “I’ve been able to hold him twice, but you have to be dressed in a gown and gloved-up. It’s not skin-to-skin. It’s not the same.”
“[Ja’bari has] a very long road ahead of him,” she wrote on the GoFundMe campaign page. “Nothing will happen overnight or over a few months, it’s going to be years and years ahead.”
“From day one, they said he had no chance of surviving and I would hate to give up or [for] everybody else to give up on him when he’s made it this far in life,” she told News 4 San Antonio. “I just want my baby to be home and be normal and [to] be able to hold [him.]”
Epoch Times reporter Tom Ozimek and The Associated Press contributed to this report.
